Elk Valley Times

Follow Us On:

Cruisin’ for a Cure for Huntington’s Disease Saturday

Posted on Friday, April 21, 2017 at 5:05 am

The 2nd Annual Cruisin’ for a Cure for Huntington’s Disease, a benefit for the Huntington’s Disease Society of America (HDSA), is set for Saturday, April 22, at Lincoln County High School.

To be held from 9 a.m. to 3 p.m. on April 22, the event will feature cars, trucks and motorcycles, in eight different categories, ranging from classics to hot rods and rat rods, to imports and muscle cars. In addition, there will be door prizes, vendors, activities for kids, music and food.

Admission to the event is free, though donations will be accepted.

“In 2013, I became aware of the Huntington’s Disease Society of America,” said Felicia Riner, who is organizing the benefit. “Huntington’s Disease (HD) is a fatal genetic disorder that causes the breakdown of nerve cells in the brain. This disease is a hereditary disorder for which there is currently no cure.

“This progressive brain disorder has a broad impact on a person’s functional abilities resulting in movement, thinking (cognition), and psychiatric disorders,” she said. “It is said that having Huntington’s is like having ALS (Lou Gehrig’s disease), Parkinson’s, and Alzheimer’s all in one disease.”

Most people with Huntington’s disease develop signs and symptoms between the ages of 30 to 50, but the onset of the disease may be earlier or later in life. When disease onset begins before age 20, the condition is called Juvenile Huntington’s Disease. Any child, male or female, with one affected parent has a 50-percent chance of inheriting Huntington’s Disease. It is estimated that one in every 10,000 persons — nearly 30,000 in the United States — have Huntington’s. Juvenile Huntington’s occurs in approximately 16 percent of all cases. Also about 250,000 people are living at risk for this disease.

As a member of the TN Chapter of HDSA, Riner said she hopes the community will join her in the effort to raise funds to benefit The Huntington’s Disease Society of America – “This is a premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s Disease,” she said. “From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their families.

“Even more so, as a mother whose oldest son was diagnosed with Juvenile Huntington’s Disease at the age of 18 in April of 2013, I plead with you to get involved,” she added. “My family and I have seen firsthand the benefits of HDSA and are grateful for the support that this organization provides for families like our own. Most importantly your support provides us and families like us with help for today and hope for tomorrow.”

For information or to register, call Felicia Riner at 931-993-6718 or visit hdsa.donordrive.com/event/cruisin2017 or the Facebook page, CrusinForACureforHuntingtonsDisase.